Anyways, Beckett was a gem of a traveler and once in Phili we got our bags, caught the rental car bus, got our car, and made out way to a nearby store for some essentials (milk, snacks) before heading to the hotel room. Of course Mr. B decided a nap wasn't for him this day and so we stayed entertained walking through the hotel atrium, checking out the pool, throwing coins in the water feature **I think I spent $5 on this activity** and later that evening we went to a nearby Ruby Tuesdays for dinner. Then it was an early to bed from a long travel day and no nap.
|Watching the planes take off and land in STL before our flight|
|Such a big boy!|
|It's really hard not to want to put the window shades up...and down...over and over again :-)|
Thursday AM Beckett and I caught the continental breakfast offered by the hotel and then decided to go swimming to kill some time. Beckett loved it and as you will see in the pictures below, was not thrilled about having to get out of the pool. We had a lite lunch in our room and then headed to CHOP for our clinic appointments. At 1pm we saw ENT. I can not say enough how much I LOVE THIS GROUP. They are seriously like family to me. Rose Mary Patel the Nurse Practitioner is so warm, caring and knowledgeable...the epitome of what nurse should be. And Dr. Jacobs treats us like family...greeting Beckett and I with hugs and kisses and is SO incredibly intelligent and really the top-notch expert in what he does. You can't ask for anything more. After the ENT appointment, we headed to see Dr. Piccone in Pulmonology. Again, talk about a nice guy with tons of expertise!!! Both appointments were uneventful and were just kind of a check-in prior to heading to the OR on Friday.
|Waiting for our next appointment and trying to stay entertained|
|Beckett loved watching the cranes and construction work at CHOP|
We left the hotel around 5:30am for CHOP and checked right into pre-surgery waiting. It's crazy cause you would think that being winter and close to Christmas the OR wouldn't be very busy, but this time it was actually busier than I've ever seen it. Thankfully a little after 6:20am we were called back to pre-op and then right about 7:30am Beckett was taken from Pre-op to the OR. Ryan walked Beckett back this time and said he did very well. We moved to surgery waiting and probably just about 20-minutes later Dr. Jacobs came to find us in the waiting area with the results. He said Beckett's airway looked great! Sizing at a 4.5 which is normal **feels good to use that word** for his age and size. He advised that we could stop his prevacid med which he has been on as a part of all his surgeries **Beckett is now not on ANY meds!!** and the best news we would just need to come visit for ANNUAL check-ups, but no further follow-ups at this time. YAHOO!!!!! Since April of 2012 we have made 7-trips to Phili and as much as I LOVE CHOP, I will not miss the stress of flying and and expense of these trips.
|Pre-op rocking and watching Mickey Mouse Clubhouse before heading back|
|Beckett Snapped this pic of Ryan in his "bunny suit" all ready to walk him back to the OR.|
|Beckett's face says it all|
|I think Beckett is trying to tell Ryan which door leads OUT of the hospital!|
|Post-op recovery...so sleepy|
|Live Christmas music in the terminal - so festive!!|
|Beckett with his new custom Eagles hat and airplane|
|All smiles on the plane|
As we started our drive out of STL, Ryan said to me...."well...we did it..." Yes we did. It was a long, trying, heartbreaking and many, many times miserable road, but we made it. Beckett made it. Beckett's odyssey has taught me so much about life. Not taking for granted the miracle of life and being given a healthy child - I think so many people don't realize what a blessing this is, but we do. Not taking for granted how fortunate we are to live in the US, have access to top-notch medical care and treatment. Had we lived elsewhere Beckett probably wouldn't be here today. Learning to ask for help **I am terrible at this** Being humbled by the goodness of people and organizations to give whatever they could to help us. How to continue on when your heart is broken, your eyes are heavy and all odds are stacked against you. The power of prayer, positive thinking and keeping the faith. To never give up. And so much more...
But ultimately I was shown the incredible strength of LOVE. If I could contribute Beckett's success to one thing it would be love. The love of our families, friends and complete strangers supporting Ryan and I. Ryan and I's love for each other and together our love for Beckett.
Beckett is a result of LOVE and with LOVE all things are possible.